DATA 
SCIENCE
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HEALTH
EQUITY

Watch this recording of the second of two workshops on Methodological Challenges in Inclusive Research: Ethical, Practical, and Statistical Trade-offs

Watch this recording of the first of two workshops on Methodological Challenges in Inclusive Research: Ethical, Practical, and Statistical Trade-offs

This event was co-hosted with Trial Forge. Major funders such as NIHR now mandate a consideration of inclusion as a condition of funding. Approval agencies such as the HRA and MHRA and encouraging applicants seeking approvals to submit Inclusion and diversity plans. But how do we make trials and health research more inclusive, and how should this be communicated to funders and approvals agencies? This webinar will consider how to design inclusive research, how to recruit and

This event was co-hosted with Our Future Health, the UK’s largest health research programme, which aims to bring together health and health-related information from millions of people to enable new discoveries about disease and health. We explored what can be learned and where Our Future Health is going next. With a particular focus on representation and equity, we’ll look at how different approaches to recruitment and participation have been developed, tested and evaluated,

This event was co-hosted with MESSAGE (Medical Science Sex and Gender Equity), a UK initiative working to improve the integration of sex and gender considerations across biomedical, health and care research. We’ll explore why sex and gender matter in health research and data science, with a particular focus on secondary data analysis and how these considerations can be more effectively embedded across the research life cycle. Please note, this recording has been edited and th

Watch this recording of a hands-on tutorial with Dr Ahwaz Akhtar (The George Washington University) on Distributional Cost-Effectiveness Analysis (DCEA) - a framework for bringing equity directly into health economic evaluation.

by Peter Oluwatimilehin, DSxHE Volunteer I knew about Our Future Health from afar, but attending the DSxHE event, Beyond Representation: Building and Using Health Data for Everyone, gave me a much better appreciation of the amount of work going on behind the scenes, particularly around improving representation in health research. The organization is working towards recruiting five million participants, and what I found particularly interesting was the effort being made to ens

Watch this recording of a hands-on tutorial with Dr Carly Brantner (Duke University) on detecting, estimating, and interpreting how treatment effects vary from person to person.

What makes clinical trials truly inclusive? Felix Odhul reflects on the importance of representation, trust, and thoughtful research design

This event was co-hosted with READI (Research in Europe and Diversity Inclusion), a European initiative working to reshape clinical research towards greater representation and inclusion. We explored the challenges of recruiting diverse and representative populations into clinical trials across Europe, with a particular focus on process: what inclusive trial design looks like in practice, and what we can learn from ongoing efforts to embed it from the outset. The session inclu

A reflection on a joint DSxHE and PEDRI event exploring the challenges and practical solutions around embedding inclusive public and patient involvement in health data research.

This event was co-hosted with HDR UK, and explored the challenges in finding and accessing representative data and, crucially, how to overcome them. We hears about HDR UK’s work across data infrastructure, technology to improve access, and inclusion, with a particular focus on: The Health Data Research Gateway which is HDR UK’s online platform to help researchers find health datasets, The Cohort Discovery Tool to help researchers determine the size of the population relevant

This event was co-hosted with PEDRI and explored how researchers can take a more thoughtful and practical approach to improving diversity in their patient and public involvement and engagement (PPIE) work. The session focused on supporting researchers to make their PPIE work more inclusive by highlighting current best practice and addressing common challenges, such as how to engage meaningfully with diverse communities and avoid tokenistic approaches. It included practical ex

Last month at Cancer Research UK’s Data-Driven Cancer Research Conference in Edinburgh, the DSxHE Data Diversity Theme led two engaging roundtables on From Data Gaps to Data Diversity in Cancer Research . Facilitated by Toral Gathani, Charlotte Misseldine and Mathew Tata, the roundtables brought together a wide range perspectives from across the cancer research ecosystem. Working across the different stages of the research lifecycle, groups explored what inclusive research l

If you’ve ever looked at a dataset and wondered, “Who’s missing?” you already understand why the DSxHE Data Diversity Theme exists . This is an 18-month partnership between Data Science for Health Equity (DSxHE) and Cancer Research UK (CRUK), focused on helping the health research ecosystem make progress on diversity in data, research design, and reporting. Why this matters When datasets are not representative, research can be less accurate, less useful, and less fair. Two st

Share your views and help us shape the priorities of the Data Diversity theme for the next year! The Turing Way Community, & Scriberia. (2024). Illustrations from The Turing Way: Shared under CC-BY 4.0 for reuse. Zenodo. https://doi.org/10.5281/zenodo.13882307 Health datasets can fail to fully represent the populations they aim to serve. When certain groups are missing or measured inconsistently, research findings may not generalise, and data-driven tools can perform less we

Recording of the launch of the Data Diversity Theme, a new initiative from Data Science for Health Equity (DSxHE) in partnership with Cancer Research UK. Don't want to miss out on any future Data Diversity theme activities? Stay up to date by joining the #theme-data-diversity channel on our Slack workspace .

We recently hosted a couple of virtual drop-in sessions to launch our latest DSxHE Theme on Data Diversity . These sessions served as both an introduction to the new theme and a starting point for an important conversation about diversity in biomedical datasets. The event featured interactive activities and thought-provoking discussions designed to spark engagement and reflection ( check out this blog post for more on that ). We also recorded a special segment with Brieuc Leh

Recently, we hosted a virtual Drop-in session for our new DSxHE Theme - Data Diversity . The purpose of the session was both to introduce...

by Brieuc Lehmann “Building a world where data improves everyone’s health” Those are the words you read every time you visit DSxHE’s...