🎥 DSxHE Data Diversity Theme X Our Future Health: Beyond Representation: Building and Using Health Data for Everyone 🎥
This event was co-hosted with Our Future Health, the UK’s largest health research programme, which aims to bring together health and health-related information from millions of people to enable new discoveries about disease and health.
We explored what can be learned and where Our Future Health is going next. With a particular focus on representation and equity, we’ll look at how different approaches to recruitment and participation have been developed, tested and evaluated, and explore some of the practical challenges and trade-offs involved in doing this at scale.
Please note, this recording has been edited and the audience discussion were not included.
About Our Future Health
Our Future Health is the UK’s largest ever health research programme, bringing people together to develop new ways to prevent, detect and treat diseases. They’re creating the most detailed picture we’ve ever had of the UK population’s health, with the help of up to five million adult volunteers from across the UK. Each volunteer will complete a questionnaire and donate a blood sample that can be linked to their health records. This data will allow health researchers to identify new ways to tackle diseases like cancer, diabetes and dementia.
They need people from all backgrounds to take part in Our Future Health, so we can help make discoveries that benefit everyone.
You can join here: https://ourfuturehealth.org.uk/
About the DSxHE Data Diversity Theme Partner Events
The DSxHE Data Diversity Theme are co-hosting a series of events to showcase and share existing work, tools, and resources developed with partners across the health research sector. The aim of the events is to
raise awareness of what is already available
create space to share learning about how these resources were developed
help identify priorities for future action.
About the Data Diversity Theme
Health datasets often don’t reflect the diversity of the populations they aim to serve. This lack of representativeness can limit the generalisability of research, reduce the effectiveness of new tools, and risk widening health inequalities.
A partnership between Data Science for Health Equity and Cancer Research UK, the Data Diversity Theme brings together researchers, clinicians, funders, and patient advocates to co-create practical ways of embedding diversity across the research lifecycle. It is co-led by Dr Toral Gathani (University of Oxford) and Dr Brieuc Lehmann (UCL).
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