This event will be co-hosted with HDR UK, and we'll explore the challenges in finding and accessing representative data and, crucially, how to overcome them. We’ll hear about HDR UK’s work across data infrastructure, technology to improve access, and inclusion, with a particular focus on:

• The Health Data Research Gateway which is HDR UK’s online platform to help researchers find health datasets,

• The Cohort Discovery Tool to help researchers determine the size of the population relevant to their research question,

• The Safe People Registry to streamline researcher verification for secure data access.

We’ll also discuss ideas for new tools and resources to help researchers in finding representative data. This will be a chance to connect across organisations, learn from work already underway, and shape how we build more inclusive data systems for health research.

About HDR UK

HDR UK are the national institute for health data science. Their mission is to accelerate trustworthy use of health data to enable discoveries that improve people's lives.

More info to follow...

Please direct any questions about the session to info@datascienceforhealthequity.com.

About the DSxHE Data Diversity Theme Partner Events

The DSxHE Data Diversity Theme are co-hosting a series of events to showcase and share existing work, tools, and resources developed with partners across the health research sector. The aim of the events is to

• raise awareness of what is already available

• create space to share learning about how these resources were developed

• help identify priorities for future action.

About the Data Diversity Theme

Health datasets often don’t reflect the diversity of the populations they aim to serve. This lack of representativeness can limit the generalisability of research, reduce the effectiveness of new tools, and risk widening health inequalities.

A partnership between Data Science for Health Equity and Cancer Research UK, the Data Diversity Theme brings together researchers, clinicians, funders, and patient advocates to co-create practical ways of embedding diversity across the research lifecycle. It is co-led by Dr Toral Gathani (University of Oxford) and Dr Brieuc Lehmann (UCL).